This past week we’ve been in what we’re calling leukaemia limbo…
If Scott didn’t know he had cancer, and a picc line hanging from his arm, it would be easy to forget he wasn’t perfectly healthy.
His first visit home in January was tentative and uncertain. Being back with us, away from the medical attention and quiet (albeit boring) routine he’d grown accustomed to brought its own challenges. He was a bit withdrawn and not himself.
I share this to demonstrate how different this break at home has been. There isn’t any hesitancy, Scott’s home with us and right back in the action negotiating mealtimes, readying school bags and diffusing inter sibling riots. Despite losing a substantial amount of muscle mass, and feeling physically weak he actually has more energy and is able and interested in being up and about. We went for a walk with friends one day last week and he pushed a stroller and didn’t need to stop to catch his breath. Our kids played together while we all hung out and life felt a bit normal. His eyes have some sparkle back. He’s hopeful. He’s ready for the next step.
But then the biopsy appointment looms ahead, along with the anxiety over potential outcomes and we’re reminded of the reason for why he’s at home. And yet this time around, we’re less nervous about the appointment because we feel so positive about the effectiveness of reinduction. Feeling good needs to count for something, right? His speedy recovery of blood cells and neuts is a good indication, isn’t it? Someone just needs to tell us that the last three weeks made a difference.. Please.
RED LIPSTICK 