RED LIPSTICK

We got the call to report back to C4 this afternoon - a bed was waiting for Scott, and he would be starting consolidation tonight. We had assumed that he would start on Monday, so we were a bit surprised, but eager to get onto the next step. When we checked Scott in with the… Continue reading Back at it in room 15.

This is what remission feels like. Juxtaposed to a horrible few months is one of the very best days of our lives. Remission has been achieved and we're one important step closer to Scott being cancer free.  Everyone has been doing quite the job of lifting us up, and we share this news knowing that… Continue reading Relief. Gratitude. Joy. Hope.

At the "28 day" appointment following the last round, Dr.L chose not to perform a biopsy because the results of Scott's blood test were sufficient to conclude that induction chemo did not work. No need to put him through the discomfort of a biopsy if it wasn't necessary. So today, we just really wanted to… Continue reading Hey brother.

This past week we've been in what we're calling leukaemia limbo... If Scott didn't know he had cancer, and a picc line hanging from his arm, it would be easy to forget he wasn't perfectly healthy. His first visit home in January was tentative and uncertain. Being back with us, away from the medical attention… Continue reading Home for a rest

The flu has been making its way through the house this month, getting its grasp on each of the children.  I thought Leigh had avoided it... until she didn't.  An immunosuppressed husband and a sick baby don't mix well. So Scott packed his bag up and headed out to his parents house to avoid contamination. … Continue reading Outbreak 

He's just hanging out with his people.   Surprised? Us too. His counts were back up to a safe level for him to be rereleased into the wild once more, so he's able to come home! His neuts were up to 1.5 today... Which is well above where he was when discharged last month. (He… Continue reading Looking for Scott?

But his neuts ain't one. In a surprising and uplifting turn of events those guys are up, and Scott is feeling much better! It's so encouraging to have him back, feeling a bit more like himself - with an appetite to boot. While there is still work to be done in terms of recovery from… Continue reading He’s got 99 problems…

I spoke too soon.  And then I didn't want everyone to be worried again after being more hopeful, so I kept quiet for a few days. But until late yesterday Scott was still in rough shape. If he took a turn for the better three days ago, he immediately did a u-turn to get back… Continue reading One step forward five steps back?

The morning has put a little more pep in Scott's step, and he's feeling hopeful that he's seen the worst of what round two has in store for him. It's a wonder what some sleep and a bit of recovery can do for your attitude. He's sitting up now, looking forward to a shower and… Continue reading Good morning/cautiously optimistic

I want to be as positive and uplifting as possible on this blog, because we decided early on not to focus on the negative throughout this process. But there is no denying that right now, it's really hard to be positive. It's really hard for Scott to be going through these tough days, and it's… Continue reading This chemo thing? It sucks.