We just finished up a meeting with Kristine, to regroup after her time off. Since Scott's stubborn neuts are still at .2 the plan is for him to receive the Neupogen injection later today to get those guys moving. If his team sees an upward trend happening over the next couple of days, then he… Continue reading Anxiously waiting
.2 and holding
No change in the neuts since yesterday, and the injection will be held off for a little bit while the doctors wait and see how they improve on their own. We're waiting to meet with Kristine tomorrow to find out when Scott's biopsy will happen over the next couple days. Hoping sooner than later. Whatever… Continue reading .2 and holding
Oh hey neut
Scotts up to .2 neuts today - and hopefully after his injection tonight he'll be high enough to come home in a couple days. Stable neuts will also mean he doesn't need to have antibiotics - another plus of these little guys making an appearance.
Can anyone around spare some neuts?
No movement on the neut front this morning so tomorrow Dr. L is going to give Scott an injection that should help encourage their regrowth. Now that he has this .5 goal in his mind in order to go home for at least a few days, the results of his morning blood tests are especially… Continue reading Can anyone around spare some neuts?
If the mountain won’t come to Mohammed
Ringing in 2016 with pad Thai and sparkling water in the common room. Proof that good friends can make a fun night out of even a crappy situation. And that its ok if the party shuts down at 9pm. Oh - and though he can't drink craft (unpasteurized) beer while immunosuppressed Scott's appetite for his… Continue reading If the mountain won’t come to Mohammed
Radio Silence
Apologies for the lack of info again, but I'm happy to report that these last few days have been fairly uneventful. Aside from playing a bit of musical beds, involving temporarily keeping company with three gentlemen in a quad room, it's been business as usual for Scott. As "usual" as life can be given the… Continue reading Radio Silence
Merry Christmas
Looks a little different this year, but the love is all the same.
Later Red Man
Here's the scoop: The doctors have changed Scott's drugs, based on the assumption that he was having an allergic reaction to the others - 'vanco' and 'tazo'. Since this change, his rash has gotten much better and he is more comfortable. So, we like the doctors that made that call 🙂 It was very frustrating… Continue reading Later Red Man
CT scan was clear
Kristine just shared that Scott's CT scan was clear, and there is no indication of a serious infection. Big sigh of relief! The rash and fever will continue to be monitored, but the infectious disease team is thinking they are likely a reaction to the antibiotic "vancomycin" referred to as "red man syndrome". When the… Continue reading CT scan was clear
Biopsy postponed
Scotts biopsy has been postponed due to his fever worsening and his rash spreading to most of his body. His doctor wants to determine what's going on before performing the procedure. He's undergoing a CT scan right now, and will have additional blood tests performed. Even though these things that are happening to him are… Continue reading Biopsy postponed
